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Director, Patient Advocacy
Zevra Therapeutics, Inc.Boston, MA, United States
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We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs.
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The Director, Global Patient Advocacy will define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients. The role manages direct patient advocacy relationships across portfolio disease states and leads advocacy plan execution. The position is based on-site in Boston, MA.
Responsibilities
Ensure deep understanding of supported disease areas and patient needs to inform our work across the organization
Create and execute a strategic and tactical advocacy plan and corresponding budget
Successfully engage rare disease advocates, building trust and long-term relationships
Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate
Collaborate with key internal teams (marketing, regulatory, market access, clinical and business development, medical affairs, corporate communications) on advocacy issues and support their need for patient engagement and insights
Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests
Attend and represent Zevra at key advocacy meetings
Identify key strategic company representation and advocacy activities at patient conferences and meetings
Build a patient centric culture
Work on site Monday - Thursday
Qualifications
BS / BA degree in biological sciences, business, marketing or similar field and 10+ years in pharma, biotech industry or patient advocacy
An established history experience in patient engagement, advocacy, and / or relations including experience in developing communications and educational resources OR
Demonstrated experience implementing organizational strategy with advocacy groups and outcomes
Skills
Relationship building with global patient advocacy organizations
Strategic planning and budget management for advocacy initiatives
Stakeholder collaboration across medical affairs, regulatory, marketing, and others
Effective communication and education resource development
Education
BS / BA in biological sciences, business, marketing or related field
Additional Requirements
On-site work requirement : Monday - Thursday in Boston, MA