Duchenne Nurse Educator (Specialty)

Why Sarepta Why Now

The promise of genetic medicine has arrived and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle central nervous system and cardiac 2023 we launched our fourth therapy and the first ever gene therapy to treat Duchenne.

Were looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.

What Sarepta Offers

At Sarepta we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas :

Physical and Emotional Wellness

Financial Wellness

Support for Caregivers

For a full list of our comprehensive benefits see our website : Importance of the Role

The Duchenne Nurse Educator (DNE) works in a highly visible dedicated team environment. The bilingual (English / Spanish) speaking DNE will support health care providers (HCPs) patients and caregivers through education on Duchenne Muscular Dystrophy (DMD) the infusion process of our approved therapies and Sarepta patient support programs. This role develops relationships with HCPs patients and caregivers to support both the HCPs and the families through their journey on therapy. The DNE also collaborates closely with their cross functional partners to ensure ongoing compliance with therapy. This position will cover Southern California Arizona New Mexico Colorado Wyoming and Hawaii.

The DNE is assigned to special projects as required such as providing nurse triage support during 24-hour on-call shift coverage. Triage support utilizes the nursing process to liaise with patient care teams to evaluate patient safety needs over the telephone. On this special project the DNE serves as a connection between patient care teams and an experienced physician with deep Duchenne and precision medicine expertise and provides in the moment guidance to patient care teams if needed while adhering to organizational policies procedures and guidelines.

The Opportunity to Make a Difference

• The bilingual (English / Spanish) speaking DNE will educate providers infusion nurses patients and caregivers on Sareptas approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (Genotype deletions disease process etc.)
• Stay current on the DMD environment.
• Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCPs patients and families.
• Present to audiences compliantly.
• Conduct Programs for disease state awareness.
• Assist to improve infusion experience for DMD patientsby providing ongoing support to the infusion nurses and sharing best practices.
• Work with SareptAssistteam and specialty pharmacy to ensure smooth transition frominfusioncenterto home infusion for PMO therapies.
• Support to patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings medical offices and home health agencies as necessary.
• Other related duties as required.
• Special projects including triage nursing support :
• Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts.
• Intake and interpret different nuances of medical information to triage calls appropriately.
• Communicates and acts as a liaison between patients care teams and an experienced physician in a confidential manner.
• Documents calls according to established guidelines (PV reporting).
• Directs the patient care team to the proper Customer Service Center (e.g. Medical information SareptAssist) based on the topic of the call. Requires on call coverage to provide day night and weekend coverage.

More about You

What Now

Were always looking for solution-oriented critical thinkers.

So if youre comfortable with ambiguity and candor relish challenging yourself and place kindness and integrity at the forefront of how you approach your peers and work then we encourage you to apply.

#LI-Hybrid

#LI-ES1

This position is hybrid you will be expected to work on site at one of Sareptas facilities in the United States and / or attend Company-sponsored in-person events from time to time.

The targeted salary range for this position is $132000 - $165000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sareptas compensation philosophy and considers factors including but not limited to education training experience external market conditions criticality of role and internal equity.

Candidates must be authorized to work in the U.S.

Sarepta Therapeutics offers a competitive compensation and benefit package.

Sarepta Therapeutics is an Equal Opportunity / Affirmative Action employer and participates in e-Verify.

Key Skills

Client Server,Actuarial,Manual Testing,Control Engineering,Financial Consulting

Employment Type : Full-Time

Experience : years

Vacancy : 1

Yearly Salary Salary : 132000 - 165000